I posted our news on Facebook on the same day we buried baby Idrys. I was quite reluctant at first, as for the last four weeks my husband and I found it difficult to talk about what was going on in our lives. We didn’t even have the strength to tell people that I was pregnant and that our baby was diagnosed with Edwards Syndrome.
I remember clearly on the day of my 12 week scan and the events that unfolded throughout the day – from the first scan with the sonographers (there were 2 of them), to another scan with a consultant, to having my blood tests done (for Down’s) to having my CVS testing done, I was most of the time on my own. I was on my own throughout the whole 5 hours at the hospital until I gave Lee, my husband, a call to meet me at the hospital. The moment I saw him, I burst into tears. We still did not know at this point that Idrys has Trisomy 18 but to be told that they can see from the NT scan that then thickness on the back of his neck is a lot thicker than it should be and the main ‘worry’ at that time according to the consultant is the fact that my baby may have develop something called ‘cystic hygroma’ and also some worrying level of ‘hydrops’ – none of which made any sense to me. All I knew was that my baby was very unwell.
I was in bits. And the first thing that came to my mind was to call my manager at work and inform her of my situation as there was no way I could get myself to go to work the next day after receiving such news. I could barely speak when I got her on the phone that I had to pass it on to my husband to do the talking and explained what had just happened.
The next four days we lived in hope. In hope that the scans were wrong and that we would get an ‘all-clear’ from the CVS test results. We were not sure where we were emotionally during that four days. Everything was a blur and nerve wrecking. I remember receiving a call from the midwife at 10am and for some reason I knew she’d call me at 10am, no idea why. I had actually prepared myself mentally for the last 4 days and also expect to be given the results of my CVS test over the phone. But she asked if I could come in to the hospital with my husband to share the outcome of the test. You know that sinking feeling you have when you know something has gone or will go terribly wrong that it makes you feel sick? That’s how I felt. I arranged for an appointment at 4.30pm as that is when we close our (coffee) shop. We were so nervous throughout the day like you won’t believe.
When we arrived at the hospital, the midwife told us to wait for her at the ‘waiting room’ – the same room where I was sent to after being told that they’ve noticed some abnormalities with my baby four days ago. The midwife came back in to the room with some papers and the test results. It was not what we’d hope to hear. She showed us the results from the test and confirmed that our baby indeed has Edwards Syndrome. My husband and i burst into tears. My heart sank. Everything suddenly became bleak and dark. The midwife then shared with us some documents with information on Trisomy 18. She also then explained what could happen next and the options available to us and none of which were good. Within less than an hour of receiving the news, and at this point we thought it was our ONLY option, an appointment was booked for me to have a medical termination the following Weds. I could not process what just happened. How do you accept the news that your baby has a fatal condition and will eventually (and rather soon) passes away? We were both in shock, and left the hospital in pieces. I was very very sad. I still remember us walking out of the antenatal ward surrounded by other expectant mothers carrying a healthy baby and felt so rejected and judged. I’m sure that was not the case, but we felt like we don’t deserve to be there amongst other expectant parents. The same feeling I had when my GP told me that I was and should still be entitled to my maternity exemption card for as long as I remained pregnant. It’s funny as when I was told of Idrys’ condition, I assumed my rights as a pregnant woman was taken away from me as I was carrying a child with a fatal condition. I felt like I don’t deserve to have any pregnancy rights as I knew my baby boy will leave me and our family soon.
I still have the same emotions now as to how I was when I had my 12 weeks scan. It’s a lot worse obviously since losing him. I am confused, upset, heartbroken, frustrated, disappointed, ruined and absolutely broken. Everything doesn’t seem real. I would sit in my car and cry as I used to. I did that a lot between the time of receiving the news to losing him. It was my moment with my unborn son when there was no one around, I would speak and ask for forgiveness from him and the Almighthy. I prayed that he would come out of me naturally so that I do not have to make any heartbreaking decision for him. It was tough. And it is still tough. A week on and the pain is still very much hurting me and my husband.
Sleep tight tonight my baby boy. Daddy & I and your brothers have not stopped crying since you left us. We even cried when you were still with us. Mommy’s certain you are being taken care of in Heaven, where you belong my baby.
You will never be forgotten and forever will be missed. Forever in our heart baby Idrys x